Friday, April 12, 2013

The Immortal Life of Henrietta Lacks



This book was my university's book of the year.  They have held seminars/discussions all year about this book, and I didn't attend a single one.  Since I have been sick, however, I have had more time on my hands.  This book has been on my nightstand here at the hospital this week, and most of the doctors and nursing staff have asked me about it or have read it themselves.  Its very good, and I highly recommend this for anyone that needs a push about their cancer treatment.  Knowing where and why and putting a person to why medicine has advanced (to give us the best chance of survival and cure) really makes me feel emotional, to say the least.  Thank you Henrietta, even though you didn't know and had no choice--- You have changed my life, for sure!

Here is the book description on Amazon.com:

Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine. The first “immortal” human cells grown in culture, they are still alive today, though she has been dead for more than sixty years. If you could pile all HeLa cells ever grown onto a scale, they’d weigh more than 50 million metric tons—as much as a hundred Empire State Buildings. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions.

Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave.

Now Rebecca Skloot takes us on an extraordinary journey, from the “colored” ward of Johns Hopkins Hospital in the 1950s to stark white laboratories with freezers full of HeLa cells; from Henrietta’s small, dying hometown of Clover, Virginia—a land of wooden slave quarters, faith healings, and voodoo—to East Baltimore today, where her children and grandchildren live and struggle with the legacy of her cells.

Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of.

Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah, who was devastated to learn about her mother’s cells. She was consumed with questions: Had scientists cloned her mother? Did it hurt her when researchers infected her cells with viruses and shot them into space? What happened to her sister, Elsie, who died in a mental institution at the age of fifteen? And if her mother was so important to medicine, why couldn’t her children afford health insurance?

Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.

Thursday, April 11, 2013

Chicken Soup for the Cancer Survivors Soul


My boyfriend's mother gave me a book titled, "courage: 100 verses for your daily journey".  Very inpiring, but I could not find it on amazon.com.  I did a search for other books that are inspirational, and this one is on my list--- I will be a cancer survivor!!

Wednesday, April 10, 2013

Gilda's Club

Gilda's Club Chicago is wonderful!  They offer tons of programs and small events for those of us dealing with cancer here at Rush University.  All are free, and they take place at different times at many hospitals in Chicago.  I was familar with Gilda's Club from Gilda Radner and her days with Saturday Night Live and those funny movies with Gene Wildner.

Yesterday, there was a 10 minute relaxation program.  A wonderful volunteer from Gilda's Club came to my room and showed me simple tips about relaxing to help me heal and sleep better.  There were other programs I noticed during my 5 week stay which included arts, games and yoga.  Patients have the opportunity to meet others also dealing with cancer, family members that come can find support and a sense of calm, knowing they are not the only ones going through this.  Its a pleasure to be able to experience these 'breaks in the day' during a lengthy hospital stay.

Gilda's Club is absolutely free, and anyone dealing with Cancer, being treated currently, or family (including children) are welcome.  It is a great organization, and I am happy to see how much of a difference this organization makes to patients.

Please visit Gilda's Club and see if they offer locations near you.

Inpatient Chemotherapy

As I am finding out, when you have leukemia, you stay in the hospital much more than when you have other types of cancer.  I think this is in part because they take and test your blood 1-2 times a day.  Depending on your counts, you might need to get platelets or other blood products to make up for what your body is not producing.  With APL, I also was on a variety of pills and medications, ranging from anti virals, anti fungals, anti biotics and even potassium and magnesium suppliments. 

Right now, I am here in the hospital for my first week of consolodation chemo, which is after your first round, you go on consolodation chemo, which is to make sure the cancer goes away...and you go into remission or are cured.  My chemo this week is different from my first round.  Every morning they give me an ekg to make sure my heart is healthy enough for the chemo treatment.  After this week, I will go home and finish the remaining chemo as outpatient. 

But, right now, I am in the hospital for one week so they can monitor me and make sure there is not an adverse reaction to this chemo.  I am not hooked up to the IV, except for chemo time.  Since I knew I was going to be spending a week here in the hospital, I packed a few things to keep me busy, like my laptop, ipad, cell phone, yarn (for crocheting), and a couple books.  My bag also was stuffed with clothes, chocolate and small microwaveable frozen pizzas.

My hospital encourages patients to walk around the floor during your stay.  Because I feel good right now, I wanted to walk around the hospital and go exploring, but they do not allow that here.  You are confined to walk around your floor only, which can be boring.  Its important to walk while you are here, though.  I also try to leave my door open as much as possible during the day.  Otherwise, I start to feel lonely and this weird feeling remeniscent of being 12 and grounded for the weekend.

Tuesday, April 9, 2013

Keeping Positive with Cancer

After 5 weeks in the hospital, I finally was able to go home.  One month later, I have returned for one week (5 days) of chemotherapy inpatient.  After this intial week, I will be continuing with chemo 5 days /week for 10 weeks.  It will be tough.  It feels like it will last forever, and I just want this over with...but I know I need to stay positive.

Keeping a positive attitude is of the utmost importance in my mind.  I know that when I try to stay positive, my family and friends say I sound better and look better when they visit or we talk on the phone.  When you put it out there that you are in this to get better...you feel better...and I think your body starts to improve.  Sure, chemo is not exactly my idea of fun.  You don't really feel it, it doesn't hurt, but your body reacts to it...with time.  During my first round of chemo, (induction), I would get an upset stomach in the middle of the night that would last until 10 am.  Even with anti nausea medicine, it was hard to control.  Of course, everyone is different.  I hated the side effects, and I am not looking forward to 10 weeks of side effects.  I am, however, looking forward to getting better.
Cancer will not get the best of me...I will get better and get better as quick as possible.